Colton was in the NICU for 12 days! Way shorter then any doctor had told us. He was doing amazing! About 2 days after Colton got his brain surgery to put his shunt in, his shunt got clogged and his neurosurgeon went in and had to tap it (put a needle into the "reservoir" part of his shunt and take some fluid it and just flush it) And after that Colton shunt worked great! Drained the fluid so well. His head was at 46cm and got down to 37 1/2cm. Majority of Colton stay in the NICU was very smooth just working on getting Colton to drink more from his bottle. His goal was to get 60cc down before the doctors would take out his feeding tube. At about 10 days old he got his feeding tube out and went home at 12 days old!
In Colton first couple of months he only had a few down moments (we are so thankful) His shunt was starting to drain a little to well so we had an MRI done which showed that Colton head drain to fast then then caused there to be subdrual fluid on the outside of Colton brain. But luckily it wasn't putting any pressure of his brain and we would just lay him flat as much as possible to slow down the shunt drainage. Colton had a follow up CT scan about 2 weeks later and it showed the fluid on the outside to be going down so we continue to just lay him flat as much as possible. 3 weeks later another CT scan showed that they fluid was going down even more!! And that Colton had more fluff! Colton Brain matter keeps expand with every CT scan we have! The doctor's have Colton diagnosis as Semi-lobar HPE and of course the Hydrocephalus. But with the past CT scan his neurologist said that that diagnosis might not be true and we might not be dealing with HPE at all. He may have another type of brain malformation. So we are just going to wait and see how Colton brain expands and figure out his diagnosis later for now we are just going to enjoy and love on him as much as we can!
Colton started to smile at 2 months old and at 2 1/2 months old started to coo!! And his head control is getting a lot better! At about 2 months old he was just started to be able to hold is head up a little. And now at 3 months old Colton can (sometimes) hold his head up for 2-3 mins at a time while laying on his belly with a little pillow under him. He is doing so amazing! We are so proud of him! And we are so unbelievably thankful! He is such a Miracle and we Thank God everyday for giving him to us! He is such an amazing boy!!
Colton head when he was over draining:
Sleeping so peacefully
Colton 2 months old!
Baby first Holiday- Halloween!
Colton 3 months old:
He is such a handsome little boy:
Holding his head up so well (3months old):
He is getting such a personality lately!
precious Colton smiles!
