December 19th, 2010- we found out that we were expecting baby #3!!
december 22 2010- We had our first ultrasound. We didn't know how far a long I was so they did an ultrasound and we found out I was about 4 weeks along. So I found out I was pregnant about 3- 31/2 weeks along!
January 5th 2011- went in for another ultrasound just to make sure there was a baby and not just an empty sac and we got a surprise. They thought we had 2 babies!! But they say a yolk sac in one and not in the other sac. So the doctor told us to go in for another ultrasound in a few weeks to see if there was in fact two babies.
January 25th 2011- Went in for another ultrasound and found out that there was just one baby and one sac. They think the 2nd sac vanished. But we were just excited that we had one little baby to love on!
Everything went pretty smoothly the next few months. I was very very tired and was really struggling keeping up with the girls and being in the first trimester. Once the second trimester hit I got a bit of relief but I was still not having a ton of energy. Luckily my husband was so understanding and helped out a ton! I didn't get morning sickness and was only very tired and couldn't get enough water! I was drink sooo much water everyday. But other then that a really great pregnancy!!
April 29th, 2011- I went in for the normal 20 week ultrasound. I was actually 22 weeks and 2 days because we had to push back the ultrasound because of Brad's work. I wasn't as excited as I was with my past two pregnancies but I think that was because we weren't going to find out the gender until our little one was born. So as we got the ultrasound done everything was fine with the baby as first (heart, lungs, stomach, and size was all great) and then the ultrasound tech looked at out baby brain.... and she wasn't to sure what to say. All I remember he saying is there seems to be some extra fluid in the brain but I am going to get the doctor to look at it just wait here while I get him... The doctor came in and everything was quiet and he kept saying these really big words to the tech and told us that he had some pretty devastating news to tell us. He walked out of the room to get another lady to look at in and all I could do was crying... it seemed like everything was so crazy, there were like 4-5 people in the room look at his brain and throwing all these big words out and not telling us anything that was going on. I looked at brad and just cried. Finally the doctor told us they they think the baby has quite a big of extra fluid on the brain... and from there I could barely hear anything... it's almost like I blacked out. He was telling us that most likely out baby will have severe brain problems and probably won't do well in life... He asked us if we wanted to Terminate the pregnancy. I couldn't believe what I was hearing. I mean i just came into the appointment thinking okay we will get to see out baby and I will force myself not to find out the gender because my husband doesn't want to... but I had no clue this is what I was going to be told. The doctors didn't really just us any clue as to what the baby had they just said it was severe and we should really think about terminating the pregnancy. He suggested an Amino so we could find out if there was a chromosome deformation and other things a long that line. So I agreed with a ton of hesitation to get the Amino... It was very painful and I hope I never have to do that again. But the whole appointment and day I seemed to be in a daze not really knowing what was going on and all I could do was cry and think why my baby... why us??
May 4th 2011- We in for a fetal MRI. Everything went smoothly and the baby coorporated and they got the pictures they needed. About a week or two later we found out that the MRI did show Hydrocephalus and semi-lobar HPE and partial agenesis of the corpus callosum.
May 9th 2011- We went in for a second option out in town a civilian doctors office. We went for the ultrasound and again it was a very quite appointment and then tech seemed a little unsure of what he was seeing.. But we did find out the gender of our baby on accident, we didn't tell him that we not wanting to know so he told us congrats on the baby BOY... and we looked at each other completely surprised! I couldn't believe it! I really thought we were having another little girl. We were sooo happy. But then the doctor came in to go over the ultrasound and what he found... he told us that our baby has Severe Hydrocephalus, and semi-lobar holoprosencephaly. He kinda explain what they were but had us meet with the genetic con. to help us understand more on what our baby had. She explain to us how severe it was, and how most likely our baby won't do everything a normal person would do. She even told us that our baby probably won't be compatible to life. She suggested we terminate the pregnancy.
The next few days were the hardest days of my life. We went back and forth about either we should keep this baby boy... with all the doctors telling us out baby won't make it through this pregnancy and won't be compatible with life, I couldn't help but think if we should keep the baby. And I barely slept, barely eat and cried for 3 days straight. I felt horrible for the girls because I couldn't be the mother they needed.
May 11th 2011- we decided at about 11pm that we wanted to keep the baby. That we knew he got put in our lived for a reason and it wasn't to terminate him. No matter what the outcome we knew that he is our son and we will fight for him. It was a really hard decision but i am SOOO happy with what we decided... looking back I don't know how I even thought about it. But with how the doctors were talking it was like they were talking us into it and that we had to terminate for the baby's sake. We finally decided by doing a pro/cons list... we listed out for terminating and not terminating the baby. It seems pretty harsh but it was the only way we could think of to help us make this decision. I was so relieved that we finally did and so relieved with our decision.
May 12th 2011- We in for another ultrasound and we told the doctors our decision to keep the baby. They seemed mad and kept telling us our baby wasn't going to be compatible with life and that there was just to many thing wrong with his brain. I was really upset and cried a lot that day. I couldn't believe how heartless the doctors were being and how they couldn't see how we felt and how we thought it was meant to be.
May 25th 2011- Had another ultrasound today. Baby is measuring 1 lbs 14 oz and his head is measuring 2 weeks ahead. His head seems to be staying the same size so that is a good thing. He is our little fighter and seems to be doing okay right now.
June 7th 2011- another ultrasound today (27 weeks 6days) Baby head has gone up from measuring 2 weeks ahead to 4 weeks ahead. Not good but it was expected. It worries me a lot, but he is still going strong and not showing any signs of stress or anything else wrong with him besides everything in the brain. Be strong baby boy!!
June 9th 2011- I feel really overwhelmed today. It seems like the doctors are so negative and it so hard to take every appointment. I just want to be positive and hope for the best but it doesn't seem like it isn't possible. I am having anxiety attacks and crying randomly... I can't even look at a little baby, I just cry. How can a little tiny baby make me cry... I feel so depressed I don't know what to do.
June 19th 2011- We won a Nap Nanny! I am so excited! I can't believe how many people voted! It just warms my heart so much to know so many people care so much about us and our baby boy! I can't wait for him to be here so I can use the Nap Nanny! And now I know our baby will sleep the best way he can and his shunt hopefully won't malfunction! Thank you Nap Nanny and every who voted!!!
June 22nd 2011- Went in for another ultrasound. Baby head is measuring 6 weeks ahead now... So his head is measuring at 36 weeks and I am only 30 weeks. All we can do is pray for a miracle. We decided that I am going to need a c-section because his head is just to big. Which I am okay with, I wish I could do a normal labor but this is what is best for him and I would do anything for my baby boy. Praying, Praying, Praying.
June 2nd 2011- A couple of my amazing friends through us a baby shower! It was so nice to have so positive thing happen involving the baby! We got a ton of amazing things and it was just a really nice day! I feel like this baby is so strong and still with us for a reason! He is going to show the doctors! Keep strong baby boy!
June 7th 2011- We in for a fetal Echo and to meet the NICU team. The Echo came out normal and they don't expect anything wrong with the baby's heart! yay! And the NICU team seems so nice and reassured us that they are willing to do anything for the baby! It's such a relief to know that there ARE doctors on our side and they are thinking our baby will make it!! Also went out in town to a doctor and got an ultrasound done... this doctor thinks the same thing. And also thinks this baby has IUGR... so more bad things to come at the baby. This doctor doesn't think our baby will make it either. I just don't get how the NICU team can be so positive and all the OB doctors are so negative... but like i said before, this baby is going to show them all they are wrong! Be strong baby boy! and also baby head is measuring 7 1/2 weeks ahead now... about 39 weeks now.
July 8th 2011- started going to NST testing twice a week. Baby is doing well and fluid is an 11.
July 10th 2011- Maternity shoot!!!!!!! so excited!!!!
July 12th 2011- Found out our c-section is scheduled for August 9th 2011!!! Then we will finally get to meet our baby boy!!!!!! Also had an ultrasound done. Baby is measuring 4 lbs 9 oz and his head is 8 weeks ahead about 41 weeks. Heartbeat was 148.
July 13th 2011- Met with the Neurosurgeon today. She seemed really nice and like she knew what she was talking about. She said that she thinks the baby has Lobar HPE. And Severe hydro and probably will get shunt surgery at about 2-3 days old.
August 2nd 2011- Ultrasound today. Baby is measuring about 6 1/2 lbs. Head is measuring about 41 cm, he was taking practice breathes! He seems to be doing pretty well, just the fluid in his head keeps getting bigger and bigger. Still praying for a miracle. 36 weeks tomorrow!!!
Please pray for our baby boy! He really could use all the prayers. We are just hoping and praying for a miracle... Praying for Our little miracle Colton. Love you little guy.
I am humbled by your story of courage & love. I believe in miracles and will pray for amazing miracles for your precious baby boy Colton.
ReplyDeleteI don't know much about HPE or hydrocephalus, but believe awareness is important and I will definitely share your story.
You are very brave and loving. I am praying in my own way for you and your lovely little boy.
ReplyDeleteI am not a doctor but I do know that shunts can work. Thank you for sharing your story. Be strong.