Monday, February 13, 2012

Lots on my mind...

I have learned that with Hydro to expect the unexpected..  I feel like my mind is always wondering about Colton.   Worried about every little movement he makes.. thinking is it a seizure, is it a "normal" thing or is it just a Colton thing.  Colton has been doing these weird movements lately that at first to me looked like he was trying to fly.  If he is laying on his belly he will throw his arms and legs out and kind of move them back and forth like he is swimming.  I thought awe Colton is trying to crawl, yay!  But as the days go on and I see him doing it more I think, is this really him trying to crawl/ getting excited or is this a weird movement his making a neuro thing... I guess I will just watch him and see. (it's always a wait and see with Colton, during pregnancy and now with him as well) Colton also is teething, or I think he is teething.. Fussy, drooling, runny nose, a slight cough and chewing on everything!!  But with hydro makes me wondering is it teething or is it more...

Colton head circumference hasn't gone up to much the last couple of months... He went from being off the charts when he was born to about 50% down to 10% at his 4 month check up. If his head doesn't start growing it could mean a couple of different things.  It could be that his bones have already fussed together, it could mean his brain stopped expanding, it could also be that Colton brain hasn't expanded enough yet to really push the bones back out again.  So this is something we will look out for.  Hopefully we can get the molding helmet soon and start to push those bones around ourselves to help from him not fussing early and not being so overlapped.

No matter what he does I am always wondering is it normal or not... Colton has taught me to enjoy every moment whether good or bad.  Every time he smiles it make the world stop and I just look at him and enjoy it!  But I have to admit I am not always just enjoying the moment, sometimes I wonder.. is this "normal"  Over the last few days I have figured out that "normal" for other babies isn't going to be what is "normal" for Colton.  I don't think I will ever stop wondering, worrying or second guessing if he is sick, teething or shunt related but I do know that I will enjoy every single moment.  He is amazing and we are so lucky to have him and no matter what comes our way I know that God has put us here for a reason and even if we don't understand the reason, there is a plan... it's God's plan for us!  I thank God everyday for putting Colton into our lives.  It may not always be easy but it's worth it!


Colton looking cute in his sunglasses:



Teething??  he loves his Sofia though!

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