We went into PEDS Sedation at 6am for Colton get his MRI and MRA done. It went pretty smooth. Colton wasn't to bad on not being able to eat breakfast. Took them a few tries to get his IV in but other then that no problems at all. Colton is a PRO at getting sedated and bounces back to himself pretty quickly.
a couple of days later I went to meet with his NSG to go over his MRI. And it was an amazing appointment! His brain has expanded so much, it's amazing!!! his brain is also changing a ton. And his NSG brought up a new diagnosis for him... schizencephaly (not very familiar with this diagnosis). Instead on HPE she is leaning more towards this new diagnosis. Not that it really matters what Colton diagnosis is, because Colton will show us what Colton does not some Label they put on him. I am very excited that HPE could no longer be his diagnosis though. HPE prognosis isn't very good, there isnt' very many adults living with HPE. Schizencephaly isn't as bad of a prognosis and there are many more adults living with it. So for me this is just a little weight lifted off my shoulders. Since Colton has been born it's always in the back of my head that the doctors told me he wouldn't make it, and just wouldn't be with us long. So I am just so happy to see him doing so well and thriving as much as he is! We are just so blessed to have Colton he is such a miracle baby. Thank you God for him and for everything you are doing for him. Thank you for healing his brain and allowing him to be with us. I couldn't ask for a great gift then the gift of my children.
Here are some pictures from his latest MRI:
this scan shows his chiari malformation
His brain growth is AMAZING! February 27th, 2012
This is a MRI from back September 26th, 2011
Look at how much his brain has GROWN!!! :) WE ARE BLESSED!
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